MiNDAUS (pronounced MindOZ) is an ambitious broad national partnership, funded by donations and the Australian Government National Health and Medical Research Council (NHMRC) in 2018, and focuses on people with MND and their primary carers. It enables healthcare workers, clinicians and researchers to work together to achieve the best outcomes and develop evidence-based health policies for people affected by MND.
MiNDAUS
Here is a video explaining the benefits of being involved in MiNDAUS.
You can choose to use the Registry for your own purposes only, or you can choose to have your clinical information collected and linked to your personal information.
This is important because collecting information from many people will allow expert Clinicians to better understand the different forms MND takes and what might cause the differences. Analysing the data collected will also help us to understand how safe and effective different treatments and medicines might be. Participating will also make it easier for you to take part in other research projects, such as clinical trials.
For more information, or to register visit www.mindaus.org.
Our team of dedicated volunteers are ready to help with your registration. To make a booking email volunteer@mndqld.org.au or call 07 3372 9004.