What is a carer?
A carer is someone who provides unpaid emotional, psychological, or practical support to a family member or friend living with an illness or disability.
Many people don’t identify as carers—they see themselves as a wife, husband, partner, parent, son, daughter, sibling, or friend But if you provide regular support to someone close to you, you are a carer. Recognising this role is often a significant step, as it may involve helping with everyday tasks, offering emotional comfort, and coordinating medical care.
Caring for someone with Motor Neurone Disease (MND)
Supporting someone with MND can be both meaningful and incredibly challenging. As the disease progresses, your loved one’s needs will change, and it’s common to experience feelings of grief, stress, sadness, or fear—all valid and natural responses.
Looking after your own health and wellbeing is not only important for you, but it also helps you continue to provide the best possible care. Having access to accurate information, emotional support, and time to rest and recharge is essential.
Support from MND Queensland
At MND Queensland, we recognise the vital role unpaid carers play—and how important it is that you feel supported too. Our MND Carers Support Program is here to walk alongside you throughout your caring journey and beyond.
Through the program, you can access:
✅ A safe space to connect and share with others in similar situations
✅ Resources and referrals to additional services and support
✅ Opportunities to ask questions and seek information
✅ Invitations to carer-focused events - supporting connection & collaboration
✅ Educational sessions from professionals on MND and caregiving
✅ Guidance on self-care and maintaining wellbeing
✅ Emotional support, including someone to talk to privately
✅ Moments to just be yourself—and even enjoy a laugh along the way
You're not alone
If you’re currently caring for someone with MND—or have done so in the past—we invite you to join the MND Queensland Carers Support Program. We’re here for you!
Click here to access our Carers Program registration form.
Contact Us
For more information about the Carers Support Program, please contact:
Leigh Gilbert
Carer and Client Services Coordinator
📞 1800 777 175 or 07 3372 9004
📧 carers@mndqld.org.au
Please click for further information on…
C - Connection
A - Advice
R - Resources
E - Education
R - Respite
S - Support