Most of these resources provide support and information tailored to carers’ needs.
MND Connect
The MND Connect website offers resources, information, and service linkages for people living with MND, their carers and families, as well as health professionals and service providers supporting them to live well.
www.mndaustralia.org.au/mnd-connect
UK Motor Neurone Disease Association – Caring and MND: Support for You Guide (UK)
This guide covers carers’ rights, assessments, services, and managing difficult emotions related to caring. While some details are UK-specific, it offers valuable general information on MND and self-care for carers.
View the Guide www.mndassociation.org/support-and-information/information-resources/information-for-people-with-or-affected-by-mnd/caring-and-mnd-support-for-you-guide
Carer Gateway
A national Australian Government-funded service providing free, local supports to carers, including counselling, coaching, peer support groups, care support planning, practical supports, and emergency respite. Wellways delivers Carer Gateway services in Queensland.
Palliative Care Queensland – Palliative Caring e-Book
An informative e-book for families and carers supporting someone with a life-limiting illness. It covers everything from understanding your role to financial support and respite care, with helpful advice and resources.
Download the e-book
https://palliativecareqld.org.au/wp-content/uploads/2023/12/PalliativeCaring_QLD-1.pdf
Carers Queensland
Supports unpaid carers across Queensland providing personalised information, referrals, system navigation, and advice for those caring for family or loved ones with disabilities, chronic or terminal illness, mental health conditions, or who are frail aged.
Visit Carers Queensland https://carersqld.com.au/
Carers Australia – Advance Care Planning and Advance Care Directives
Information and resources to help carers engage in advance care planning and understand advance care directives.
Learn more
www.carersaustralia.com.au/information-for-carers/advance-care-planning-and-advance-care-directives/
Queensland Government – Carer Support
Information about supports and services available for carers in Queensland.
Carer Support | Queensland Government www.qld.gov.au/community/support-for-carers
Services Australia – Caring for Someone
Details on payments, services, and help if you need time off work to care for someone temporarily or ongoing.
Services Australia Caring Support www.servicesaustralia.gov.au/caring-for-someone
Violet
A platform helping Australians talk openly, plan meaningfully, and find dignity in life’s final chapters.
Visit Violet www.violet.org.au/
End of Life Care: A Guide for People Living with MND
A helpful guide focused on end-of-life care considerations specifically for people with MND and their carers. https://mndwamndwa.blob.core.windows.net/assets/contentpage_htmlcontent/MNDAus_EndofLifeGuide_DIGITAL_LR.pdf
Carer Help
A comprehensive website offering resources to help carers understand what to expect, communicate effectively, plan ahead, and make shared decisions. It includes a library of resources organized by category and five carer pathways based on common experiences during end-of-life care.
Visit Carer Help www.carerhelp.com.au/